On Saturday, we met up with Jessica, Elessia, and their kids for a walk on the Jordan River Parkway. We have been trying to arrange an outdoor activity when the weather was good enough to be outside for a bit. We continue to try to mostly stay home and social distance as much as possible, so we haven't seen them much. It is not possible to wear masks and social distance from preschoolers...
As you can see, we had blue skies and white fluffy clouds, but there was a bit of a wind that kept it a bit colder. Nevertheless, it was fun to be together for an hour and to be outside.
They love their Aunt Jena....
On the bridge, but Carter had already slipped away before baby Ezri joined the photo!
Carter----
Alex---
Liam---
Ezri---
Zander---
Elessia, me with Zander and the twins
Jessica sent these photos later---
It has been a bit of a hard week for us as Carter has been diagnosed with Chiari Malformation Type 1. This means that her brain is growing faster than her skull and it is putting pressure on her brain. They did an MRI this week which discovered this problem. It can explain all of the different problems that she has been diagnosed with since her birth, but it wasn't anything that the doctors had expected. She has an "urgent" appointment with a neurosurgeon on March 11 and will likely have surgery at the end of March or in April to reduce the pressure on the brain. It has the potential to eliminate all of the problems or only some of them depending on the extent of damage to the nerves being impacted. It is a big scary thing, but with the potential for amazing help for her. As you can see, she is a happy darling little girl. We are glad that finally there are some answers, but it is still a very uncertain time.
Bodies are amazing but very complicated! We will keep you updated.
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