Utah Down Syndrome Foundation

It is official now.  I am the new president of the Utah Down Syndrome Foundation (UDSF).  When I was younger, I used to feel like we were "called" to serve in the Church and we got to "choose" our other "volunteer" engagements.  I felt like I could pick and choose what I would do at my kids' school, PTA, and other community commitments.  I might have occasionally prayed about those things, but the emphasis was on the "occasionally".  Community involvement was important to me and I tried to "wrap" it around whatever my Church calling was and what my kids were involved in.  Much of what I did was within the schools or with adoption.

Now I am here to tell you that was false thinking on my part.  I think the Lord is highly involved in the details of our lives and He has many ways and plans for us--things for us to do--and some of those things are outside the walls of the Church.  Despite my incompetence and my stumbling, I think I have been in places to meet people and to interact with them in a variety of ways for my good, for my family, and hopeful for the good of those I was "helping".  (We all know that we are the ones who often benefit most when we are helping others.)

Over the last 6 months, things have been happening which have led me to this responsibility.  I did not want to do it but in asking our Heavenly Father it became clear that it was something I was to do.  Why would it matter if I am in charge of this non-profit organization at this time in the history of the world?  How about this time in the history of ME?  I had plans to go to the temple more, do family history, organize photos, make quilts  and get more prepared.  These are all good things, things I can do, I now want to do. Now I am adding 10-20 hours a week for a "worldly non-profit".  Why?

I don't know why.  As is often the case, my "why" questions don't come with quick replies.  It is the "What should I do" questions that seem to come with quick answers.  The "whys" come years later or maybe in the eternities!

One thing for sure is that I am passionate about Jena and making a world a better place for her and all others who come to life with a specific set of "trials" from the get-go.  We should belong to a world where all can belong, all can flourish and all are treated with dignity and respect.  We are so blessed as Jena brings the best out in those she is around.  Other persons with Down syndrome have different struggles, but all need that chance to be a part of the whole of life.  I can be a part of that cause.  "We all are daughters (and sons) of Heavenly Father who loves us......."

So this is what I am going to be doing this summertime (and for the next 2 years or so)..........what about you?

(And all of you, just be aware, September 14th is the "2013 Buddy Walk for Down Syndrome" which is our major fundraiser.  We have not been involved with this much in the past because it has conflicted with Special Olympics.  Not this year and as President, of course we are going to support the walk with "Team Jena" or whatever we decide to call our team.  You can come and walk with us with a donation to the foundation or you can just donate.  Watch for more information!  Clear the date and join us at West Jordan City Park.)